Current Research Projects
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- - Brittle Bone Disorders Consortium Studies - The purpose of this study is to collect information about the a person's life with OI.
- - Osteogenesis Imperfecta (OI) Quality of Life Survey - The purpose of this study is to identify questions about how is it like to have OI and how does it impact your life.
- - Pregnancy in Osteogenesis Imperfecta (OI) Registry - This is an project that helps doctors determine if a child has OI before it is born.
- - Hospital for Special Surgery Research Study on Cardiopulmonary Outcomes in OI - Individuals 18 years of age or older who have a diagnosis of OI are able to go to this single-visit research study.
- Dental Malocclusion and Craniofacial Development in OI - Study investigators will look at dental health in people with OI. The purpose of this study is to check if people who have OI have good teeth and see if OI affects their teeth.
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